Charlene has sustained hypoxic brain damage during birth, mainly damage in the frontal lobe and the 4th ventricle area.
We as a family and friends would like to support her in critical funds needed to maintain her everyday needs and treatments with physiotherapy as well as occupational therapy and speech therapy, as well as a critical MRI (brain scan) needed in Gauteng to identify more specifically Charlene’s diagnoses, THIS WILL BE YEARLY. She needs to continue with therapy on a long term basis to optimize her development and continuous observations will determine further interventions when necessary.
CHARLENE IS 7 YEARS AND STILL WORKING VERY HARD TO IMPROVE EVERY STEP OF THE WAY. NEW DISCOVERY OF BRAIN STEM CELL TRANSPLANT. WE ARE EXPLORING OUR OPTIONS, CHECKING EVERY AVENUE WHERE WE COULD IMPROVE CHARLENE`S WAY OF LIVE. . CHARLENE NEED TO GET – AT LEAST 4 STEM CELL TRANSPLANTS , A YEAR – WHICH SHOW GREAT IMPROVEMENT. IT IS HOWEVER A VERY EXPENSIVE TREATMENT, +- R30 000 PER SESSION.
SHE IS ALSO STILL ON NAPPIES, AND SPECIAL MILK FOR HER STOMACH – BECAUSE SHE IS NOT ACTIVE – SO SHE IS CONSTANTLY CONSTIPATED.
COST PER MONTH – R3600
MOST OF HER PHYSIO EQUIPMENT HAVE TO BE REPLACED THIS YEAR BECAUSE SHE OUTGROWN THEM – IMPORTANT IS HER BATH CHAIRS AND STANDING FRAME – BECAUSE SHE CAN NOT WALK, SIT , HOLD HER OWN BOTTLE, STAND, EAT BY HERSELF. SHE NEED 24 HOUR SUPERVISION BECAUSE SHE CAN NOT TALK, SO SHE CAN NOT TELL US WHEN SHE IS HUNGRY OR THIRSTY OR SORE.
MOST URGENT NEED NOW ARE HER CHAIRS:
- LECKEY MYGO (Quote INCL)
- BEANSEAT STABILO (Quote INCL)
IF YOU ARE INTERESTED IN ANY FUTHER INFORMATION, PLEASE CONTACT:
CARIN BOSHOFF – GRANDMOTHER OF CHARLENE
CELL: 0726170513 OR E-MAIL: firstname.lastname@example.org
From a letter received from her grandmother.